Everything our coalition needs in one place: clinical guidelines, referral pathways, training programs, research, and patient resources for anal cancer prevention across the NYC metro area.
Jump to the resources most relevant to you. Each path pulls from guidelines, research, training, and tools curated for your work.
Screening algorithms, when to refer, how to add anal cytology to your practice, and pre-test messaging guidance.
Advanced HRA courses, certification pathways, peer network connections, and the latest treatment evidence.
Integrating screening into HIV care, where to refer for HRA, and NYC metro referral directory.
Referral documentation standards, triage pathways, HSIL management evidence, and treatment capacity resources.
Data for institutional investment cases, cost-benefit evidence, policy resources, and billing guidance.
Landmark studies, emerging evidence, active research questions, and coalition coordination resources.
Prevention-treatment coordination, registry planning, screening referral pathways, and patient pipeline.
What to expect from screening, support groups, educational videos, and how to get involved with the coalition.
The guidelines that shape how we screen, treat, and refer across the NYC metro area.
Clinical approach, risk stratification, screening algorithms, and shared decision-making. Covers cisgender women, cisgender men, and transgender individuals with HIV. The most directly applicable guideline for NYC metro providers.
The first comprehensive international screening guidelines. Risk-stratified initiation: age 35 for MSM/TW with HIV, age 45 for other PWH and MSM/TW without HIV, 10 yrs post-transplant for SOT recipients, within 1 year of vulvar precancer/cancer diagnosis.
When to screen, which methods to use, and how to manage abnormal results. Practical complement to the IANS consensus guidelines.
Now incorporates ANCHOR findings and recommends screening for and treating anal HSIL in people with HIV, marking anal cancer prevention as standard of care.
ACIP recommendations: routine at 11-12, catch-up through 26, shared decision-making 27-45. Gardasil 9 prevents anal cancer from HPV types 16, 18, 31, 33, 45, 52, and 58.
The studies driving our work. Coalition researchers emphasized coordination and data sharing as top priorities.
Phase 3, 25-site RCT. Treatment of anal HSIL in PWH reduced progression to cancer by 57%. This study's dissemination fundamentally changed the screening and billing landscape.
Real-world analysis of cytology, hrHPV testing, and co-testing for identifying HSIL in a large HIV cohort. Critical for choosing between strategies.
The Digital Anal Rectal Examination: evidence base, clinical utility, and why IANS now recommends it at all screening visits. Safe, effective, no major adverse events.
Evidence supporting self-collection. Could address stigma barriers and reach those in areas lacking experienced clinicians.
Current research directions: self-collected screening, HPV testing strategies, and expanding access to underserved populations.
Clinical guidelines now recommend screening for and treating anal HSIL in people with HIV, marking a paradigm shift toward prevention as standard of care.
Federal summary of findings and implications for people living with HIV. Useful for policy briefs, advocacy, and grant applications.
Expanding the HRA-trained workforce was the coalition's #2 priority. These resources support providers at every level, from first exposure through advanced certification.
The gold standard curriculum: Virtual Standard Course (foundation), Virtual Advanced Course (intermediate+), Hands-on Course (in-person skills), and Advanced Case-Based Workshop. The standard course is prerequisite for most other programs.
Individualized clinical training for physicians and APPs in HPV-related anal disease. Requires IANS Standard Course. Expert mentorship with real hands-on skills training.
In-depth: lesion identification, biopsies, dysplasia assessment, electrosurgical treatment, and CO2 laser therapy.
Practice standards and educational resources on HRA technique from the American Society for Colposcopy and Cervical Pathology.
LGBTQIA+ Health Education Center webinar by Dr. Ami Multani. Evidence base for screening, benefits/drawbacks in primary care, and further training resources. Perfect entry point for PCPs and ID specialists.
Goes beyond MSM to cover cisgender women, immunosuppressed individuals, and other at-risk populations. Fenway Institute certified for AMA PRA Category 1 Credit.
Literature review podcast on the ANCHOR findings and clinical implications. Accessible format for busy providers.
Training slides covering risk factors, recommended methods, and management pathways. NECA AETC (serving NY, NJ, PR, USVI) was identified at the coalition meeting as a CME accreditation partner for future symposia.
The world's first professional society for anal cancer prevention. Guidelines, HRA training, patient education, and translated resources.
Fenway Institute. 80+ on-demand webinars on LGBTQIA+ health, most with CME/CEU credit.
Every role group at our inaugural meeting independently identified broken referral pathways as the most critical issue. This directory is a first step toward a city-wide referral network.
This table captures what we know today. The coalition's goal is a comprehensive, regularly updated referral map with wait times, insurance acceptance, referral processes, and new patient availability. Update the member database or email david@cheekycharity.org with additions.
The birthplace of modern anal cancer prevention. UCSF experts first identified the link between anal precancerous lesions and anal cancer. Offers screening, HRA, infrared coagulation, electrocautery, and leads clinical research nationally.
Resources to support program planning, grant writing, institutional investment cases, and reimbursement navigation.
National incidence, mortality, and survival data. Approximately 0.46% of new cancers in the general population.
Comprehensive epidemiology, risk factors, detection, staging, treatment, and survival rates. Useful for patient materials and awareness campaigns.
The codes you need for anal cancer screening encounters:
National Cancer Institute summary of the ANCHOR study results, framed for healthcare providers, public health professionals, and policymakers.
The organizations working on anal cancer prevention, HPV-related cancers, and LGBTQ+ health equity. Many have members or representatives in the ASSETS-NY Coalition.
World's first professional society for anal cancer prevention. Guidelines, HRA training, patient education, translated resources.
Cancer info, patient support, advocacy. Coalition member Julianne Roman is on the planning committee.
Queer-led nonprofit and ASSETS-NY convener. PrideCare support groups, community education, patient advocacy.
National HPV education, prevention, and advocacy. Emerging Sciences Webinar Series, HPV Next Steps tool.
Patient empowerment, peer-to-peer support, medical resources, and advocacy.
Free counseling, support groups, education, financial assistance. Call 800-813-HOPE (4673).
Cancer research and awareness with a focus on HPV-related cancers including anal cancer.
HIV clinical guidelines including anal screening. Dr. Gonzalez (Medical Director) and Dr. Norton (Deputy) are coalition partners.
HRSA-funded HIV training network for NY, NJ, PR, USVI. Identified as CME partner for future symposia.
The coalition identified patient education, reducing stigma, and centering patient voices as essential. These resources are for sharing with patients and community members.
Educational webinar for patients: what anal dysplasia is, why screening matters, what to expect during procedures, and how to advocate for your own care.
Memorial Sloan Kettering's patient-friendly guide to anal dysplasia, HPV connection, risk factors, and what screening looks like. Available as web and PDF.
Symptoms, risk factors, prevention, diagnosis, treatment, and survivorship. Written with the LGBTQ+ community in mind, relevant for everyone.
Interactive personalized guidance on vaccination, screening, and next steps based on individual circumstances.
Patient-oriented explanation of HPV vaccination and its role in anal cancer prevention, including guidance for adults.
Patient-facing info on dysplasia, treatment options, what to expect from HRA, and support services from the leading anal cancer prevention center.
Addresses the stigma around anal dysplasia and makes the case for open conversation. Helpful for patients hesitant to discuss anal health.
Connects patients and caregivers with trained volunteers who've been through it. Emotional support and practical guidance at any stage.
Support groups for LGBTQ+ cancer patients and survivors. Safe space to connect, share, and receive emotional and practical support.
One-on-one counseling, support groups, workshops, and financial assistance. English and Spanish. Hopeline: 800-813-HOPE (4673).
Telehealth for anorectal health. Entry point for patients facing geographic or stigma barriers. Coalition member Dr. Carmen Fong is CMO.
Not-for-profit health plan for Medicaid members with HIV/AIDS and transgender individuals in NYC.
Ryan White Act allocations for PWH services. Coalition member David Martin is Community Co-Chair.
Partnership in Care program. Coalition member Dr. Yury Parra serves as Medical Director.